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Arc 2023 Report to the Community

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Empowering people with intellectual and developmental disabilities and their families to lead better lives by providing a lifetime of high-quality services, family support, and advocacy.2023Report to the Community

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Each year, St. Louis Arc serves more than 4,500 people and families throughout the St. Louis region. Our full range of programs, resources, support, networking and advocacy impacts the lives of people across the lifespan and in every area of life. We are successful when each person is able to live a full life as an active, contributing member of the community; and when families are able to care for and support their family members throughout their lives.THE ARC IMPACTThey call her Itsy, after the Itsy Bitsy Spider. She does hard things every day — sometimes exhausting therapies — but Itsy is determined and smiling.“When Itsy started with therapy, she couldn’t hold her head up or track things with her eyes,” recalls Shamecka, Itsy’s mom. “She needed all this equipment and toys that we were trying to buy.” A therapist suggested Arc’s Capable Kids and Families (CKF) program. CKF has helped the family get access to equipment they can borrow for as long as needed and switch out when it’s time to try something else. “Some of the specialized toys we’ve borrowed, to the naked eye, seem like regular toys,” says Shamecka. “But they’ve helped her so much, with learning cause and effect, or with getting her attention so she can learn.” “Her brain is growing through all this playtime. People who see her now will say they didn’t realize she is the same child,” says her mom. “She has changed so much.” Kele says he loves cooking, so making lunch for himself and other participants in the NextED Challenge program this past summer was easy. But other learning activities have proven useful in helping the 19-year-old community college student tackle new challenges. “I learned about using the public bus system, for one thing,” he says. “And managing money and nances, and basically how to not need my parents for everything.” NextED Challenge is a week-long program that offers young adults an opportunity to try some of the independent skill building activities that are part of the St. Louis Arc’s NextED curriculum. “The summer experience is an opportunity to take risks Aging with Empowerment (AWE) participant Retha has a special love of all things Disney. In addition to enjoying Disney movies, she’s visited Disney World and longs to travel there again.“Retha would love to go back to Disney someday, but it wasn’t something she could do right now,” says Stephen Turner, coordinator of AWE North County. “One thing we do in AWE is look for ways to support people’s goals and interests.” Thanks to funding from Charter’s Spectrum Digital Education grant program, the St. Louis Arc offers a variety of technology resources that enable participants to connect with the larger community for learning, leisure, and communications. AWE staff worked creatively to engage with Retha and use the technology in Itsy’s special health needs and various medical interventions have meant a lot of physical recovery for her. For the past year, Itsy and her family have used a special piece of equipment known as a Tumble Forms Tadpole to build strength in her core muscles. Itsy uses the Tadpole regularly to strengthen muscles and experience a variety of positions, including tummy time, sitting for meals and standing. “Now more than a year later, Itsy’s our little miracle! She’s sitting, holding her head up, talking,” says Shamecka. As a busy mom, Shamecka appreciates not only the equipment but also the resources and family support CKF provides. She refers and practice skills in a safe environment,” says Libby Eversgerd, Arc’s Director of Transition Services. The 10-week NextED program and the summer challenge sessions are targeted to young adults who want to further develop and strengthen skills for independence. Curriculum is focused on key components of independent living that include household skills, personal safety, communication, planning leisure activities, money management, and social relationships. “Participants practice skills like cooking and laundry, but also making decisions, negotiating with roommates and navigating and engaging in the community around them,” says Libby.place to plan a virtual trip to Disney. “They mapped the trip, checked out sites along the way, like Nashville, and used it for a teaching tool for mileage, math and money,” says Stephen. With the aid of an accessible computer system called iN2L, staff were able to access special interactive programming on Disney Plus, like a “Behind the Attractions” program that Retha could share with friends and staff. Arc staff are helping other participants use technology to pursue their personal interests in a variety of ways. “Participants may do anything from visiting a museum to composing music and art to simulating ying in different kinds of airplanes,” Stephen says.“They did Disney with me and they did a wonderful job too,” says Retha, enthusiastically. “We do interesting things here, and I have fun.” often to Arc’s e-newsletters that highlight community resources. That’s where she read about one of St Louis Arc’s collaborations with an organization that makes songs for children with health challenges.“Knowing my child responds well to music, I reached out to them,” she says. “They made her a song using her name, and now our whole family goes around singing her the Itsy song! It’s just beautiful.”NextED Challenge sessions take place in a local Airbnb and on a college campus, and include an overnight option. “We’re out in the real world environment,” she says. “It’s not home, it’s not necessarily their comfort zone, but it’s a chance to try out a variety of situations and be successful.”“For me, I enjoyed it because everyone was new to me, so I got to meet some new friends,” says Kele. “It felt like we did get to be part of a community all working together.” Now more than a year later, Itsy’s our little miracle! She’s sitting, holding her head up, talking,” says Shamecka.RethaItsyGetting the Best Early StartKeleSampling What’s NextA Little (Tech) Magic

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Each year, St. Louis Arc serves more than 4,500 people and families throughout the St. Louis region. Our full range of programs, resources, support, networking and advocacy impacts the lives of people across the lifespan and in every area of life. We are successful when each person is able to live a full life as an active, contributing member of the community; and when families are able to care for and support their family members throughout their lives.THE ARC IMPACTThey call her Itsy, after the Itsy Bitsy Spider. She does hard things every day — sometimes exhausting therapies — but Itsy is determined and smiling.“When Itsy started with therapy, she couldn’t hold her head up or track things with her eyes,” recalls Shamecka, Itsy’s mom. “She needed all this equipment and toys that we were trying to buy.” A therapist suggested Arc’s Capable Kids and Families (CKF) program. CKF has helped the family get access to equipment they can borrow for as long as needed and switch out when it’s time to try something else. “Some of the specialized toys we’ve borrowed, to the naked eye, seem like regular toys,” says Shamecka. “But they’ve helped her so much, with learning cause and effect, or with getting her attention so she can learn.” “Her brain is growing through all this playtime. People who see her now will say they didn’t realize she is the same child,” says her mom. “She has changed so much.” Kele says he loves cooking, so making lunch for himself and other participants in the NextED Challenge program this past summer was easy. But other learning activities have proven useful in helping the 19-year-old community college student tackle new challenges. “I learned about using the public bus system, for one thing,” he says. “And managing money and nances, and basically how to not need my parents for everything.” NextED Challenge is a week-long program that offers young adults an opportunity to try some of the independent skill building activities that are part of the St. Louis Arc’s NextED curriculum. “The summer experience is an opportunity to take risks Aging with Empowerment (AWE) participant Retha has a special love of all things Disney. In addition to enjoying Disney movies, she’s visited Disney World and longs to travel there again.“Retha would love to go back to Disney someday, but it wasn’t something she could do right now,” says Stephen Turner, coordinator of AWE North County. “One thing we do in AWE is look for ways to support people’s goals and interests.” Thanks to funding from Charter’s Spectrum Digital Education grant program, the St. Louis Arc offers a variety of technology resources that enable participants to connect with the larger community for learning, leisure, and communications. AWE staff worked creatively to engage with Retha and use the technology in Itsy’s special health needs and various medical interventions have meant a lot of physical recovery for her. For the past year, Itsy and her family have used a special piece of equipment known as a Tumble Forms Tadpole to build strength in her core muscles. Itsy uses the Tadpole regularly to strengthen muscles and experience a variety of positions, including tummy time, sitting for meals and standing. “Now more than a year later, Itsy’s our little miracle! She’s sitting, holding her head up, talking,” says Shamecka. As a busy mom, Shamecka appreciates not only the equipment but also the resources and family support CKF provides. She refers and practice skills in a safe environment,” says Libby Eversgerd, Arc’s Director of Transition Services. The 10-week NextED program and the summer challenge sessions are targeted to young adults who want to further develop and strengthen skills for independence. Curriculum is focused on key components of independent living that include household skills, personal safety, communication, planning leisure activities, money management, and social relationships. “Participants practice skills like cooking and laundry, but also making decisions, negotiating with roommates and navigating and engaging in the community around them,” says Libby.place to plan a virtual trip to Disney. “They mapped the trip, checked out sites along the way, like Nashville, and used it for a teaching tool for mileage, math and money,” says Stephen. With the aid of an accessible computer system called iN2L, staff were able to access special interactive programming on Disney Plus, like a “Behind the Attractions” program that Retha could share with friends and staff. Arc staff are helping other participants use technology to pursue their personal interests in a variety of ways. “Participants may do anything from visiting a museum to composing music and art to simulating ying in different kinds of airplanes,” Stephen says.“They did Disney with me and they did a wonderful job too,” says Retha, enthusiastically. “We do interesting things here, and I have fun.” often to Arc’s e-newsletters that highlight community resources. That’s where she read about one of St Louis Arc’s collaborations with an organization that makes songs for children with health challenges.“Knowing my child responds well to music, I reached out to them,” she says. “They made her a song using her name, and now our whole family goes around singing her the Itsy song! It’s just beautiful.”NextED Challenge sessions take place in a local Airbnb and on a college campus, and include an overnight option. “We’re out in the real world environment,” she says. “It’s not home, it’s not necessarily their comfort zone, but it’s a chance to try out a variety of situations and be successful.”“For me, I enjoyed it because everyone was new to me, so I got to meet some new friends,” says Kele. “It felt like we did get to be part of a community all working together.” Now more than a year later, Itsy’s our little miracle! She’s sitting, holding her head up, talking,” says Shamecka.RethaItsyGetting the Best Early StartKeleSampling What’s NextA Little (Tech) Magic

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Capable Kids and Families®A lending library of therapeutic toys and equipment for children, and support services and resources for parents.181 CHILDRENEmbedded Early EducationEmbedded supports for teachers, children, and families in North County early childhood centers.374 CHILDREN IN 16 CENTERSPreventionEducation and awareness aimed at reducing the incidence of fetal alcohol syndrome.Education to: 22,052 PEOPLEBroader reach through media: 6,661,252Parents Learning TogetherParenting support and education for people with disabilities who are raising children.47 PARENTS + 104 CHILDRENSupport and CounselingCounseling and targeted support for moms, dads, siblings, caregivers of older adults, and people with disabilities. 240 PARTICIPANTSFamily Education & AdvocacyWorkshop series, networking opportunities, advocacy support, and other educational activities for families and participants. 1,290 PARTICIPANTSFamily Navigation1:1 support to assist an individual or their family in navigating through a transition or goal. 291 PARTICIPANTSIn-home Residential Support (Respite)Short-term relief for families caring for a child or adult with a disability. Arc provides reimbursement services.1,346 FAMILIESResources and ReferralsConnecting families to information and resources through phone, email, and in-person meetings.4,152 ENGAGEMENTSTransition SupportsNEXT: Teen and young adult transition programs, including independent living classes, individualized coaching and social skills events.233 PARTICIPANTSIndependent LivingCONNECT: Providing customized levels of support to help individuals live independently in the community.80 PARTICIPANTSSupported EmploymentSupport to nd and maintain paid employment; includes assessment, job coaching, job placement, and retention. 474 PARTICIPANTSEmployment TrainingSupport in attaining employment skills, including summer programs (Neighborhood Experiences and SWEP/STEP) and collaborating with school districts to help students gain work experience.134 PARTICIPANTSLifeTechHelping individuals identify, acquire and learn the right technology to support their best life.37 PARTICIPANTSChildren’sServicesFamilySupportIndependence SkillsRecreationIndividual and team sports, weekend camp, active living programs, E-Sports, and Arc United Sports.361 PARTICIPANTSSocial and InstructionalActivities such as dances, book club, art andcooking classes, Family Fun Nights, musictherapy, Arc Escapes and community meet-ups.549 PARTICIPANTSSocial OpportunitiesDautel CircleSupport for people to live in homes located on a campus-like environment in west St.Louis County with 24-hour stang. 60 RESIDENTSCommunity-BasedSupport for people to live in apartments and homes in the community with 24-hour stang. 50 RESIDENTSResidentialSupportCommunity EngagementDay program for adults to participate in their communities through volunteerism and recreation. 130 PARTICIPANTSAging With EmpowermentProgram for aging adults that allows choice of daily activities, common community space, and options for socialization both in the community and on-site. 62 PARTICIPANTSLIFTLearning Independence for Tomorrow day program for adults to participate in their community while focusing on building skills in communication, safety, and behavior management. 17 PARTICIPANTSAdult Behavioral SupportsStrategies for supporting individuals to decrease challenging behaviors, helping them improve their quality of life, meet goals, or participate more fully in the community. 66 PARTICIPANTSDaySupportA Lifetime of Support In FY2023, The Arc... 627volunteersBeneted from the services of505staffEmployedfull- and part-timeParticipant numbers based on the scal year ended June 30, 2023.

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Capable Kids and Families®A lending library of therapeutic toys and equipment for children, and support services and resources for parents.181 CHILDRENEmbedded Early EducationEmbedded supports for teachers, children, and families in North County early childhood centers.374 CHILDREN IN 16 CENTERSPreventionEducation and awareness aimed at reducing the incidence of fetal alcohol syndrome.Education to: 22,052 PEOPLEBroader reach through media: 6,661,252Parents Learning TogetherParenting support and education for people with disabilities who are raising children.47 PARENTS + 104 CHILDRENSupport and CounselingCounseling and targeted support for moms, dads, siblings, caregivers of older adults, and people with disabilities. 240 PARTICIPANTSFamily Education & AdvocacyWorkshop series, networking opportunities, advocacy support, and other educational activities for families and participants. 1,290 PARTICIPANTSFamily Navigation1:1 support to assist an individual or their family in navigating through a transition or goal. 291 PARTICIPANTSIn-home Residential Support (Respite)Short-term relief for families caring for a child or adult with a disability. Arc provides reimbursement services.1,346 FAMILIESResources and ReferralsConnecting families to information and resources through phone, email, and in-person meetings.4,152 ENGAGEMENTSTransition SupportsNEXT: Teen and young adult transition programs, including independent living classes, individualized coaching and social skills events.233 PARTICIPANTSIndependent LivingCONNECT: Providing customized levels of support to help individuals live independently in the community.80 PARTICIPANTSSupported EmploymentSupport to nd and maintain paid employment; includes assessment, job coaching, job placement, and retention. 474 PARTICIPANTSEmployment TrainingSupport in attaining employment skills, including summer programs (Neighborhood Experiences and SWEP/STEP) and collaborating with school districts to help students gain work experience.134 PARTICIPANTSLifeTechHelping individuals identify, acquire and learn the right technology to support their best life.37 PARTICIPANTSChildren’sServicesFamilySupportIndependence SkillsRecreationIndividual and team sports, weekend camp, active living programs, E-Sports, and Arc United Sports.361 PARTICIPANTSSocial and InstructionalActivities such as dances, book club, art andcooking classes, Family Fun Nights, musictherapy, Arc Escapes and community meet-ups.549 PARTICIPANTSSocial OpportunitiesDautel CircleSupport for people to live in homes located on a campus-like environment in west St.Louis County with 24-hour stang. 60 RESIDENTSCommunity-BasedSupport for people to live in apartments and homes in the community with 24-hour stang. 50 RESIDENTSResidentialSupportCommunity EngagementDay program for adults to participate in their communities through volunteerism and recreation. 130 PARTICIPANTSAging With EmpowermentProgram for aging adults that allows choice of daily activities, common community space, and options for socialization both in the community and on-site. 62 PARTICIPANTSLIFTLearning Independence for Tomorrow day program for adults to participate in their community while focusing on building skills in communication, safety, and behavior management. 17 PARTICIPANTSAdult Behavioral SupportsStrategies for supporting individuals to decrease challenging behaviors, helping them improve their quality of life, meet goals, or participate more fully in the community. 66 PARTICIPANTSDaySupportA Lifetime of Support In FY2023, The Arc... 627volunteersBeneted from the services of505staffEmployedfull- and part-timeParticipant numbers based on the scal year ended June 30, 2023.

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ARC HIGHLIGHTS FINANCIAL INFORMATION Expanding Children’s Services With funding from Community Impact Network and St. Louis County Children’s Service Fund, Arc’s Family Resource Specialists are now embedded in 25 early education centers serving approximately 1,000 children. Arc ensures all children are screened for developmental delays and helps teachers and parents provide instruction so all children can be ready to learn. 25Early Education CentersFUN FACTEngaging with Assistive Technologies Arc’s LifeTech staff works with people to identify, acquire and use assistive technology in their daily lives. Technology specialists provide one-on-one training to ensure people understand the technology provided, and ongoing support so they feel comfortable using it. In FY2023, LifeTech provided 162 individual training sessions to participants. After 90 days, 100% reported they were able to navigate their community and complete daily tasks more independently. 162TechnologyTrainingsFUN FACTSupporting People’s Independence Arc’s Connect program helps young adults live independently with limited supports each week. In the past year, Connect has grown its services to reach 17 more people, for a total of 80 adults living and working independently in the community. Nine young people have moved from their family homes to their rst apartments, with support from Connect. 9First ApartmentsFUN FACT123UnitedAthletesFUN FACTPromoting Social Connections Arc’s Leisure Services elds 15 United Teams that bring together people of all abilities to play together in community recreation leagues. Arc currently has opportunities to participate on United Teams in basketball, softball, soccer, bowling, pickleball and E-sports. United Teams build community awareness and support for inclusion, and provide a venue for people to engage with others and build social connections in the community around them. Plus, it’s fun! ExpensesOperating Expenses $33,415,545 Residential 45% Adult Day 20% Family Support / Respite 14% Children’s Services 4% Supported Employment 5% Leisure 3% Management & General 7% Fundraising 2%Net AssetsTotal Net Assets $30,713,662 Unrestricted Operating $ 12,750,874 Unrestricted Quasi $ 13,939,264 Endowment Permanent Endowment $ 2,346,767 Temporarily Restricted $ 1,676,757 100%80%60%40%20%0%RevenueTotal Revenue $38,044,023 Government Fees – State 61% Government Fees – Local 22% Program Fees 5% Contributions & Events 5% United Way 2% COVID Relief & Investments* 5%* Includes one-time funding and endowment investment performance.Year Ending June 30, 2023

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ARC HIGHLIGHTS FINANCIAL INFORMATION Expanding Children’s Services With funding from Community Impact Network and St. Louis County Children’s Service Fund, Arc’s Family Resource Specialists are now embedded in 25 early education centers serving approximately 1,000 children. Arc ensures all children are screened for developmental delays and helps teachers and parents provide instruction so all children can be ready to learn. 25Early Education CentersFUN FACTEngaging with Assistive Technologies Arc’s LifeTech staff works with people to identify, acquire and use assistive technology in their daily lives. Technology specialists provide one-on-one training to ensure people understand the technology provided, and ongoing support so they feel comfortable using it. In FY2023, LifeTech provided 162 individual training sessions to participants. After 90 days, 100% reported they were able to navigate their community and complete daily tasks more independently. 162TechnologyTrainingsFUN FACTSupporting People’s Independence Arc’s Connect program helps young adults live independently with limited supports each week. In the past year, Connect has grown its services to reach 17 more people, for a total of 80 adults living and working independently in the community. Nine young people have moved from their family homes to their rst apartments, with support from Connect. 9First ApartmentsFUN FACT123UnitedAthletesFUN FACTPromoting Social Connections Arc’s Leisure Services elds 15 United Teams that bring together people of all abilities to play together in community recreation leagues. Arc currently has opportunities to participate on United Teams in basketball, softball, soccer, bowling, pickleball and E-sports. United Teams build community awareness and support for inclusion, and provide a venue for people to engage with others and build social connections in the community around them. Plus, it’s fun! ExpensesOperating Expenses $33,415,545 Residential 45% Adult Day 20% Family Support / Respite 14% Children’s Services 4% Supported Employment 5% Leisure 3% Management & General 7% Fundraising 2%Net AssetsTotal Net Assets $30,713,662 Unrestricted Operating $ 12,750,874 Unrestricted Quasi $ 13,939,264 Endowment Permanent Endowment $ 2,346,767 Temporarily Restricted $ 1,676,757 100%80%60%40%20%0%RevenueTotal Revenue $38,044,023 Government Fees – State 61% Government Fees – Local 22% Program Fees 5% Contributions & Events 5% United Way 2% COVID Relief & Investments* 5%* Includes one-time funding and endowment investment performance.Year Ending June 30, 2023

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2023 Board of DirectorsRon ReimChairman of the BoardSherry WardChair Elect & Vice Chairof Human ResourcesMark JostesVice Chair of FinanceJoe KinnisonImmediate Past ChairSuzanne C. EngelhardtVice Chair of Special Events& Corporate OutreachG. Patrick GalvinCo-Vice Chair of DevelopmentAndy KaneeldCo-Vice Chair of DevelopmentCourtney DeanVice Chair of Communication and MarketingScott MonetteVice Chair of Program StrategyF. Michael J. LackeyVice Chair of GovernancePaul BelferMichkeal CrossLeland B. CurtisHazel DonaldDavid GiuntoliFred JaeckleKaren JordanDan KelleyJohnny Londoff, Jr.Dave MayoChristopher MenzLibby NewportBhavik PatelApril Regester, Ph.D.Zikomo Simmons Mary StewardKathie WinterEmeritusConnie SchnuckThomas K. VandiverPresident & CEOMark A. Keeley, MSW, LCSWGET INVOLVED TODAY!VISIT: www.slarc.orgCALL: 314-569-22111177 N. Warson Road St. Louis, MO 63132 Join Us In Our MissionWorkfor the Arc and help empower people to live their best lives.Volunteerfor a variety of activities on a one-time or ongoing basis.Donatea gift in support of programs that change people’s lives.Hirea reliable, dedicated Arc participant to join your company’s workforce.